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Last year, New York became the first state to require newborn screening for a genetic disorder called Adrenoleukodystrophy, or ALD. The disorder rapidly attacks the nervous system. The most common form of ALD mainly affects young boys and can be fatal within a year.

But if ALD is detected in newborns, a bone marrow transplant can help them survive. The legislation is known as "Aidan's Law" for Aidan Jack Seeger, who died from ALD in 2012 at age 7.

"Aidan had curly dirty-blond hair, giant blue eyes," his mother, Elisa Seeger, says on a visit to StoryCorps with her husband, Bobby Seeger Jr. "He always liked to be 'fancy,' as he called it — dress shirts and ties. And he had a really strong personality and he could not be told what to do."

"We'd find him at 7:30 in the morning, watching cartoons with a bowl of M&M's, and he'd be drinking a can of Coca-Cola," Elisa laughs.

Aidan's Law And The Hunter Family

When newborn screening under Aidan's Law began, Nick and Lindsay Hunter's son, Matthew, was among the first to test positive for ALD. When Lindsay first read about Aidan, she said, 'We have to find Aidan's mom and just hug her.'

Aidan's mom, Elisa Seeger, interviewed the Hunters at StoryCorps.

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Saving for retirement is a challenge facing most Americans. Research shows the challenge is made harder by our basic human impulses. We know we should be saving. But we don't. We consistently make bad financial decisions.

One thing that leads us astray is what behavioral economists call "loss aversion." In other words, we hate losing. And that gets in the way of us winning — if winning is making smart financial decisions.

How A Smashed Car Is Like A Smashed Nest Egg

A few months ago I got rear-ended and my Jeep Cherokee was totaled. It's the first new car I ever bought. (That was 15 years ago, so it wasn't new anymore.) But I loved that car. And I hated losing it.

Insurance didn't give me much money to replace it. But still, I ran out with that $3,000 and impulsively bought the first cheap car that looked like my old one to replace it. The problem is, the underside of it was really rusty. I should have known the car would be more trouble than it was worth.

But it was like my primitive brain took over. I just wanted my car back. And I bought it anyway. Fast-forward 3 months, and three other things have broken on the car. It won't start. And I've discovered "frame rot." Ken Lucas, the owner of Elite Bodyworks in Boston, took a look at the car and said the rust is "extremely bad." He adds, "I wouldn't recommend you drive it."

Great.

I cover financial stuff as a reporter and I've always saved a lot for retirement. So why did I make this rash decision to buy such a clunker?

Well, it turns out a lot of Americans make all kinds of bad financial decisions for exactly the same reason.

We Hate Losing More Than We Love Winning

Professor Brigitte Madrian teaches behavioral economics at Harvard. "You experienced this loss of your car, and you wanted to make the loss go away," she says.

Madrian says this human instinct to avoid loss — she calls it "loss aversion" — is very powerful. In fact, once we have something, we hate losing it more than we enjoyed getting it in the first place. "It hurts twice as bad," she says. "The literature suggests that people are twice as sensitive to losses as they are to gains."

In other words, we hate losing twice as much as we love winning. And that gets us into trouble with financial decisions because it gives us the wrong impulses. These can lead us to make bad choices, involving a lot more money than a cheap, rusty car.

The Mistake Of Buying High And Selling Low

Generally, people understand that to make money investing in the stock market you want to buy low and sell high. But our instincts can lead us in the other direction. Take the stock market crash in 2008. A lot of people felt that loss so intensely, they did what they should never do. They sold all their stock after the market had already crashed and lost half its value.

Madrian says the sense of loss is very powerful in a situation like that. And they wanted to act, to stop the bleeding, to make the pain go away. So people lose sight of the more rational idea that if you are in the market for the long haul, if history is any guide, the market has always recovered.

So why sell after stocks crash? It's a human, emotional decision. Not a considered, analytical one.

Saving isn't losing. But it feels like it.

People know they should save. But most of us still just don't like writing a check to squirrel money away for the future. Madrian says that feels like a loss from our checking account. And our aversion to that is very strong and it often irrationally wins out. So, Madrian says, the best advice by far is to take advantage of things like an automatic payroll deduction.

In other words, getting your employer to put part of your pay into a retirement account before it ever shows up in your checking account. That sort of tricks us into feeling like we never had the money in the first place. And that saves us from ourselves. "The money you don't see is the money you don't miss," Madrian says.

Something We Should Fear: Fees

Usually, mutual funds and financial advisers don't ask you to write a check to pay them. They just take a percentage out of the money they're holding and investing for you. But that's often very expensive over time. People agree to it, though, because the cost — and the loss — isn't as visible. In this case, Madrian says, "the loss you don't see is the loss you don't feel."

She says if you find a good financial adviser, you'd be better off paying them by the hour to sit down once a year to give you advice — the same way you pay someone to do your taxes. Paying 1 or 2 percent of your entire life savings every year in fees could potentially cost you hundreds of thousands of dollars in lost profits over the course of 30 years.

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Amid all the of necessary analysis of what Russia's move into Crimea means geopolitically and strategically, it might also be good to remember Reshat Ametov.

Mr. Ametov was buried this week. He was 39 years old, married and the father of three young children.

He was last seen at a demonstration on March 3 in Simferopol, where he joined other Crimean Tatars held a silent protest before the pro-Russian armed men in unmarked uniforms who surrounded the cabinet ministers building.

Tatars make up more than 10 percent of Crimea's population. Many Tatars, who are primarily Sunni Muslim, were brutally deported by Joseph Stalin in the 1940s, and scattered over the deserts of central Asia and Siberia. As many as 200,000 Tatars died in that government removal. Some Tatar families began to come back after Ukraine became independent in the 1990s.

Video from ATR, a local Crimean television channel, shows two armed men in green uniforms, and one in a black uniform, surrounding Reshat Ametov, taking him by the arms, and leading him away.

"He was just standing there and they took him away," Ametov's mother, Refika Ametova, told the Kyiv Post, an independent newspaper. "He stood there for about an hour and a quarter, and I suppose they were waiting for him to leave. But he didn't."

His family called the police, who said they could find nothing. Two weeks later, people in a village about 28 miles away found a man's body in a nearby forest. Local media reports suggested there was clear tape wrapped around his head and hands, and signs of torture.

Reshat Ametov's wife identified the body as her husband's.

Human Rights Watch has called for an investigation into Reshat Ametov's disappearance and death, and they're concerned the crime is not isolated.

"For weeks, armed, masked men who refuse to identify themselves have harassed and intimidated people," says Rachel Denber, deputy Europe and Central Asia director at Human Rights Watch. And Crimean Tatars living in Brooklyn and Queens told the New York Daily News that relatives in Crimea report that X's have been slashed in paint on the doors of some Tatar families.

Enver Ablakimov was at Reshat Ametov's funeral. He is 21 years old and told the Kyiv Post, "There were always people here who didn't like us, but before, they hid it. Now with the appearance of the Russian army, they feel protected and understand that no one will do anything."

It's that past that may make Tatars in Crimea apprehensive about the future.

Would March Madness be terribly different if the players were paid?

Probably not. The college basketball tournament might become more professionalized, but it wouldn't look much different from what we're seeing right now.

"I don't see it changing one iota," says ESPN basketball analyst Jay Bilas.

Last week's National Labor Relations Board ruling that football players at Northwestern University should be able to form a union triggered dire warnings from the NCAA that the ideal of the student-athlete would be forever corrupted if players were treated as employees and paid as such.

But for fans, the reality is that the game wouldn't change. The real question is how the pie would be sliced, with players suddenly demanding a share of the take.

"It's another NCAA scare tactic," says Bilas, who played basketball at Duke University. "They're saying it's going to crumble when they talk about giving the athletes a penny over their expenses, and it's wrong."

The Game's Already For Sale

It's hard to imagine March Madness getting any more commercial.

The tournament is already a billion-dollar event, with as many Burger King and AXE body wash commercials as television can carry.

"Any time we cover an NCAA tournament event, the NCAA will not allow you to sit courtside with beverages that do not have the label from one of their sponsors," says Kevin Blackistone, a sportswriter who teaches journalism at the University of Maryland.

Fans would still be able to buy jerseys emblazoned with team names and the numbers of their favorite players — with those players maybe seeing a cut.

It's possible that ticket prices could go up, but that's been happening for years anyway, as coaching salaries have soared into the multi-million-dollar range.

And it's not like the pro version of the sport will suddenly be dominated by big-money programs — the Stanford Facebookers or the Kansas Koch Brothers — or at least no more than it's dominated by big money programs already.

The Two-Way

Labor Board Rules Northwestern University Players Are Employees

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